BRYONY DALY is an extraordinary young woman
who throughout her 23 years has repeatedly been challenged with highly malignant
cancers. Now, having just recovered from a second amputation on her left leg due
to a bone tumour, she is faced with secondary cancer in her lung, but most significantly
for her and many others in her situation, she is faced with the end of the line
as far as what the National Health Service has to offer.
Bryony has
stood up against the odds since she was nine years old, when a calf injury failed
to heal, and she was eventually diagnosed with a rare and highly malignant muscle
tumour. Life for Bryony and her family completely turned upside down. She was
rushed to Bristol to receive debilitating treatments, operations, hair loss, coupled
with appalling ward conditions. The next year was spent almost entirely in hospitals
in Bristol and Exeter having chemotherapy, surgery, radiotherapy, alongside anthroposophical
(Steiner-based) treatment, homoeopathy, healing and other alternative treatments.
Bryony Daly at The Hole in the Wall Gang Camp 2002
In 1993 she made her first visit to The Hole in the Wall
Gang Camp (THITWGC) in Connecticut USA. This is one of many camps now established
by Paul Newman (funded by his food products) which provide children with life-threatening
diseases with an opportunity to have a great time. This was a fantastic experience
for Bryony - at the end of a rollercoaster week, many strong relationships had
been built with other campers and with the leaders. At 12 yrs old Bryony's leg
was useless having been debilitated by surgery and a lot of radiotherapy that
stunted its growth. Just as she reached the conclusion that a false leg would
be better, she was diagnosed with bone cancer caused by excessive radiotherapy,
and so amputation was a must. Four months more chemo followed.
Then
followed almost 10 years clear of cancer during which she went to Exeter School.
There, Bryony developed her love of music, teamed up with her partner Kit and
then moved on to Birmingham University where she obtained a 2:1 in Music. Every
year, she found a way to return to THITWGC either in USA or Ireland. She became
a trainee leader and eventually spent every summer leading many teams of children
of all ages, all of whom had a life-threatening condition of some kind. During
summer at camp last year her knee started to hurt. Initially she thought it was
due to the enthusiastically overactive lifestyle of camp.
At the end
of the holidays she returned to England to start teacher training, but her knee
deteriorated. Then began a three month battle with her consultant to get him to
take possibility of a recurrence seriously. Eventually she had to be admitted
to hospital because she was in so much pain. At this point she was finally diagnosed
with another radiotherapy-induced bone tumour. Not all of the area that had been
irradiated had been amputated. Unfortunately by this time she had secondaries
in her lung.
At the end of last year Bryony moved to London with Kit,
very close to the Middlesex Hospital that specialises in bone tumours and near
her family for support. She was prescribed another 6 months chemo, and an amputation
above the knee. Internet research prompted major changes in terms of diet - in
line with much current thinking on cancer - and taking a huge range of immune
system boosters and anti-cancer agents became a daily ritual. She has now finished
chemotherapy, one session short of the six that were prescribed. The point had
been reached when it starts to do more damage than good. Unfortunately it has
only had a limited effect, keeping the tumours in check but not reducing them.
The NHS does not really have anything to offer in this situation, and so Bryony's
family have been investigating all the most recent developments in cancer treatment.
Bryony has just started treatment with Dr Julian
Kenyon at the Dove Clinic in Hampshire. He has recommended Photodynamic Therapy
as the best first treatment for Bryony. The treatment is very expensive! £8000
a cycle! If the results are good, he will probably want to repeat it several times.
OPENING DOORS: Financial donations are vital at this time and
hugely appreciated. "Yes to Life" is establishing itself as a registered
charity to further its aims to assist others. Bryony's positive attitude has already
shone a light for others. Successful alternative treatment will prove that this
is a viable option that must be invested in with public funds. Not only could
it save Bryony's life, but also the lives thousands of other young people like
her. The good news is that there are other possible treatments available if this
is not effective. Unfortunately none of these are supported under the National
Health System. It is now time to rally our support and show that it is possible
to keep going against all odds. Yes To Life desperately needs your generosity
to help Bryony and others like her.
Photograph courtesy of David Brazier
JEROME FLYNN TO CHAMPION THE APPEAL - Jerome Flynn,
of Soldier Soldier, and Robson & Jerome fame, has agreed to head up the appeal.
This is great 'leg up' in terms of our ability to gain publicity. Jerome has known
Bryony for several years and has first hand experience of the treatments that
we are planning for Bryony, as his father, the actor Eric Flynn, was helped greatly
by a very similar treatment for lung cancer recently.
We are sorry to have to inform you that Bryony sadly passed away on the evening
of Monday 9th August 2004. Bryony put up a brave struggle and was a real inspiration
to everyone who knew her and to those who had never met her and our thoughts are
with Bryony's family at this difficult time. We have also received this letter
that we'd like to share with you.
"Dear Friends,
We
are very sad to have to let you know that last Monday at about 6.30pm Bryony passed
away, very peacefully, surrounded by Kit and all her family.
We're sorry
that this is sudden and unexpected news for most of you, as many of you have not
heard anything since before she went in for her surgery. Things moved very fast
in the last weeks. About a week after the operation we were told that her cancer
had spread a lot, and this was what was causing the problems in her lungs. A few
days later her breathing trouble got much worse, and we were all called to her
side in the early hours of Monday morning, when it was clear that her lung could
not keep going much longer. She wasn't in pain, and most of the time was sleeping,
and we sat with her all day until she left, slowly and peacefully.
We
know you will share our sorrow at losing such a beautiful human being who was
loved and supported by so many people around the world. In her last months, your
incredible support and generosity gave her hope and fuelled her courageous fight
against her illness. But sadly we did not have time to give her much of the treatment
that we hoped could have helped her when conventional doctors had given up. Her
time had come and she was ready to go. In her memory we plan to use the remaining
money raised to help bring hope, support and treatment to others who are in a
similar situation. We have not yet decided the details of how we will do this,
but will let you all know as soon as we do.
Please contact us if you
would like to know about the arrangements for her funeral in London on August
17 or the celebration of her life which we will be holding in Devon on August
21.
With gratitude and very best wishes, Bryony's Family - Nancy, Robin,
Ellen & Myrren"